EMPOWER YOUR HEALTH JOURNEY WITH

Patient advocate services

For people with Ehlers–Danlos Syndrome

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LET’S AMPLIFY YOUR VOICE

So your health concerns are heard — and actually addressed

As someone living with Ehlers–Danlos Syndrome, you’re used to being ignored. Some providers just don’t know how to help you. Others don’t care to try. 

You deserve more from the healthcare system. And we’re here to help you get it.

As your patient advocate, we will do our darnedest to ensure your voice is heard, your symptoms are healed, and your needs are met. 

Let us handle the complexities of your EDS care, so you can focus on what matters most: your health and wellbeing.

We’ve got your back

(And your front. And the rest of your body.)

Whatever health (or healthcare) concerns you’re dealing with, you can trust our team to help you handle them well.

Your personal patient advocate will assist with anything you need, from coordinating EDS care to fighting for the treatments you need.
Because everyone deserves a strong advocate in their corner — you most of all.

Your patient advocacy services may include:

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  • Managing the logistics of your care can be overwhelming. Our patient advocate can help you schedule and organize your medical appointments, ensuring you get the care you need without the stress.

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  • Understanding and relaying medical information can be complex. We bridge the gap between you and your healthcare team, ensuring your questions are answered and your concerns are heard.

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  • A new diagnosis can feel overwhelming. We help you break down medical terminology, provide clarity on what it means for your health, and empower you to make informed decisions.

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  • Every patient deserves to understand their options. We guide you through potential treatments, therapies, and interventions so you can choose the path that aligns best with your needs and goals.

  • Dealing with insurance can be frustrating and time-consuming. Our patient advocate assists with claims, appeals, and pre-authorizations to help you access the care and coverage you deserve.

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  • From financial assistance programs to specialized care services, we connect you with the right resources to support your journey to better health.

LET'S GET STARTED

“Trying to navigate the healthcare system on my own was exhausting and overwhelming.”

"Between endless referrals, denied insurance claims, and doctors who didn’t communicate with each other, I felt like I was constantly hitting a wall. Having a Patient Advocate changed that." 

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Why you may want a patient advocate

⟣ Simplify your EDS health care

⟣ Save time researching treatment plans

⟣ Discover new, effective care options 

⟣ Raise concerns you haven’t considered

⟣ Prevent errors, missteps, and frustration

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⟣ Resolve insurance disputes or conflict with providers

⟣ Keep track of your visits & test results

⟣ Get extra financial, social, and legal support

⟣ Safeguard your medical rights

⟣ Ensure your safety, security, and success

You’re still the hero of your own health —

You just have a helpful sidekick now

Investment

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initial Consultation

INVESTMENT: $350

This 60-minute initial consultation explores your healthcare experiences and advocacy needs.

Afterward, we'll recommend a personalized support plan with our hourly advocacy services tailored to your specific situation—whether that's coordinating appointments, navigating insurance, or communicating with your healthcare team.

INQUIRE NOW
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Flexible advocacy

INVESTMENT: $150/hour

Recommended or those who need help navigating a specific healthcare challenge.

    • Researching treatment options

    • Coordinating care for a new diagnosis

    • School / work place accommodations

    • Requesting medical records

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advocacy essentials

INVESTMENT: $495/month

For foundational support in organizing your healthcare journey.

    • 4 hours/month with a 3 month commitment

    • Appointment scheduling and coordination

    • Preparing for medical visits

    • Requesting and organizing medical records

    • Basic insurance navigation

    • Finding specialists or resources

    • Advocacy in provider communications

INQUIRE NOW
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comprehensive advocacy

INVESTMENT: $995/month

For those with more complex medical needs, this level of support includes everything in Advocacy Essentials, plus:

    • Everything in Advocacy Essentials

    • 8 hours/month with a 3 month commitment

    • Coordinating care between multiple specialists

    • Insurance support

    • Tracking symptoms and

      treatments

    • Researching treatment options, clinical trials, or specialized providers

    • Assistance with disability accommodations

    • Personalized health action planning

INQUIRE NOW
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Frequently asked questions

VIEW FAQS

GET THE COMPREHENSIVE, COMPASSIONATE CARE YOU DESERVE

With a patient advocate who cares for you — and about you

Fill out this form to inquire about our patient advocacy services. We’ll be in touch with more information shortly!

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