sleep glossary

eds lifestyle essentials

  • Short Definition:
    A non-drug device delivering low-level electrical currents via earlobes to promote relaxation.

    Long Definition + Context:
    FDA-cleared for insomnia and anxiety, Alpha-Stim sends micro-currents that may boost endorphins and normalize brain-wave patterns. Chronic-illness patients (fibromyalgia, MCAS) report calmer minds and easier sleep onset without medication side effects. It’s one tool among many integrative options.

  • Short Definition:
    A structured program to change thoughts and behaviors that disrupt sleep.

    Long Definition + Context:
    CBT-I uses sleep restriction, stimulus control (bed only for sleep/intimacy), cognitive reframing of sleep worries, and relaxation training. It’s first-line for chronic insomnia—even in EDS/POTS—because it addresses underlying anxiety about sleep and adapts strategies around pain or positional needs (e.g., elevated head).

  • Short Definition:
    Your body’s internal 24-hour clock governing sleep–wake cycles and hormones.

    Long Definition + Context:
    Strong rhythms mean alert days and sleepy nights. Dysautonomia or chronic pain can shift your clock—pain spikes or mast cell surges at odd times. Reset tools include morning bright-light exposure, consistent bed/wake times, and timed melatonin to realign your rhythm for restorative sleep.

  • Short Definition:
    A machine that keeps airways open with steady airflow during sleep.

    Long Definition + Context:
    Used to treat obstructive sleep apnea, CPAP prevents airway collapse by delivering air through a mask. EDS patients often have lax airway tissues or small jaws that predispose them to apnea—CPAP can dramatically improve sleep quality, daytime energy, and reduce cardiovascular strain.

  • Short Definition:
    Sleep repeatedly interrupted by arousals or awakenings, reducing quality.

    Long Definition + Context:
    Brief arousals—from pain, nocturia, reflux, or MCAS itching—prevent deep and REM sleep cycles. You may clock 8 hours yet wake unrefreshed. Addressing root causes (timed pain meds, H2 blockers, antihistamines, bathroom timing) and, if needed, a sleep study can identify and correct fragmentation sources.

  • Short Definition:
    Raising the head of the bed 6–8 inches to improve circulation and breathing.

    Long Definition + Context:
    Helpful in POTS to reduce nocturnal diuresis and morning orthostatic drops, and in reflux to prevent heartburn awakenings. Some EDS patients with low-CSF-pressure headaches need the opposite (flat sleeping). Tailor elevation to your diagnosis: tilt up for dysautonomia, flat for orthostatic headache syndromes.

  • Short Definition:
    Excessive sleepiness or prolonged sleep (>10 h) without feeling refreshed.

    Long Definition + Context:
    Often driven by non-restorative sleep, untreated apnea, or central hypersomnias. In dysautonomia, severe fatigue may persist despite hours in bed. Managing underlying sleep quality issues (apnea, pain control, MCAS stabilization) and, if needed, daytime wake-promoting agents can restore normal wakefulness.

  • Short Definition:
    Sudden muscle twitches or a “falling” sensation as you begin to sleep.

    Long Definition + Context:
    Common and benign, but stress or overtiredness can exacerbate them. In EDS/POTS, they rarely signify neurological disease—more often a cue to improve sleep hygiene and reduce late-day stimulants. Awareness and relaxation exercises can lessen their frequency.

  • Short Definition:
    Difficulty falling asleep, staying asleep, or waking too early.

    Long Definition + Context:
    Can be initial, middle, or late insomnia. EDS/POTS/MCAS patients suffer insomnia from pain, autonomic surges, or nighttime mast cell activation. Treatment blends CBT-I, optimized pain/mast cell management at night, sleep hygiene, and judicious use of short-term sleep aids or melatonin.

  • Short Definition:
    A naturally occurring hormone that signals the body to prepare for sleep.

    Long Definition + Context:
    Produced by the pineal gland when darkness falls. Low-dose supplements (0.5–3 mg) taken 60–90 minutes before bedtime can realign delayed sleep phase and ease sleep onset. Overuse or high doses may disrupt REM and cause vivid dreams—titrate carefully.

  • Short Definition:
    A sudden nighttime awakening with racing heart, as if an adrenaline dump occurred.

    Long Definition + Context:
    Triggers include nightmares, hypoglycemia, or MCAS-mediated mediator release. Patients wake startled, anxious, or flushed. Mitigation strategies: pre-bed antihistamines, small protein snacks to stabilize glucose, relaxation techniques, and reviewing medications or mast cell triggers that peak overnight.

  • Short Definition:
    Excessive sweating during sleep, drenching bedding or pajamas.

    Long Definition + Context:
    Can stem from autonomic dysregulation in POTS, MCAS flares, hormonal shifts, or infections. Cooling the sleep environment, using moisture-wicking bedding, and avoiding late-night triggers (spicy foods, alcohol) help. Persistent night sweats warrant evaluation of thyroid, mast cell activity, or glycemic control.

  • Short Definition:
    Frequent nighttime urination that disrupts sleep.

    Long Definition + Context:
    Lying flat increases renal blood flow in POTS, provoking diuresis. Limiting fluids 1–2 h before bedtime, wearing nighttime compression, and head-of-bed elevation can reduce nocturia. If persistent, assess for diabetes, sleep apnea, or medications causing polyuria.

  • Short Definition:
    An abnormally high heart rate during sleep.

    Long Definition + Context:
    POTS patients may awaken with rapid pulse due to autonomic surges or MCAS mediator release. Management includes bedtime fluid and salt loading, possible low-dose beta-blockers at night, and head-of-bed elevation to blunt fluid shifts that trigger tachycardia.

  • Short Definition:
    Sleeping adequate hours but still waking unrefreshed.

    Long Definition + Context:
    Often due to poor sleep architecture (lack of deep or REM sleep) or micro-arousals from pain, reflux, or MCAS symptoms. Solutions target quality: treat apnea, optimize nighttime pain/mast cell control, use weighted blankets or white noise, and consider therapies (sodium oxybate, certain antidepressants) under specialist guidance.

  • Short Definition:
    Headaches worsened by standing, relieved by lying flat or with head elevation.

    Long Definition + Context:
    EDS patients with CSF leaks need supine rest; POTS patients benefit from head-of-bed elevation to reduce fluid shifts. Choosing the correct sleeping angle is therapeutic—either flat or tilted—to manage orthostatic headache syndromes and improve overall sleep comfort.

  • Short Definition:
    Sleep disturbances from dysautonomia even when supine or turning.

    Long Definition + Context:
    Nighttime positional changes can trigger tachycardia or dizziness; increased nocturia also fragments sleep. Strategies include slow roll-overs, compression garments worn overnight, head-of-bed elevation, and pacing nocturnal activities (e.g., timed bathroom visits) to minimize autonomic flares.

  • Short Definition:
    Abnormal behaviors during sleep, like sleepwalking or vivid nightmares.

    Long Definition + Context:
    Chronic-illness stress, pain, or medications (antidepressants) can provoke parasomnias. Safety measures (locking windows, removing trip hazards) and, if needed, low-dose melatonin or benzodiazepines under specialist care can reduce episodes and improve overall sleep safety.

  • Short Definition:
    An irresistible urge to move the legs, often with tingling sensations at rest.

    Long Definition + Context:
    Worsens in the evening, disrupting sleep onset. Associated with low iron or magnesium, certain medications, and chronic pain. Management includes checking ferritin levels, leg stretches or massages before bed, and, in some cases, dopaminergic agents prescribed by a clinician.

  • Short Definition:
    Repeated pauses or shallow breathing during sleep causing fragmentation.

    Long Definition + Context:
    EDS patients—due to lax airway tissues or craniofacial differences—are at higher risk of obstructive sleep apnea. Symptoms include loud snoring, gasping for air, and daytime fatigue. Diagnosis via polysomnography leads to treatments like CPAP, positional therapy, or oral appliances.

  • Short Definition:
    The pattern of sleep stages (light, deep, REM) across the night.

    Long Definition + Context:
    Healthy sleep cycles through stages several times. Chronic pain, fibro (“alpha-delta anomaly”), or MCAS surges can disrupt deep (Stage 3) and REM sleep, leaving you unrefreshed. Interventions that reduce nighttime pain and histamine release help restore normal architecture.

  • Short Definition:
    Habits and environment adjustments that promote good sleep.

    Long Definition + Context:
    Includes consistent sleep–wake times, a cool/dark/quiet bedroom, avoiding caffeine and heavy meals before bed, limiting screens, and a relaxing pre-bed routine. For chronic-illness patients, adapt routines around pain management and positional needs (e.g., bath with Epsom salts, gentle stretching).

  • Short Definition:
    An overnight laboratory test monitoring sleep stages, breathing, and movement.

    Long Definition + Context:
    Records EEG, respiratory effort, oxygen saturation, and limb movements to diagnose apnea, periodic limb movement disorder, or narcolepsy. EDS/POTS/MCAS patients with severe or unexplained sleep issues may benefit from a sleep study to guide targeted treatments.